After we received the negative iron test, we proceeded to test for dystonia, fragile X, chromosome microarray and exome trio, MR, neuropsych exam, spinal tap, and other miscellaneous tests including…
It's been a little over six months since I've updated my blog. I've sat down many times to only walk away from my computer because I can't find the words…
As we were walking into the door after spending all morning at Cooks Children's Hospital in Fort Worth, Jackson's developmental pediatrician's number popped up on my phone. She said "I…
It's taken me over a week to process and digest the information we received at Jackson's initial Child Study Center appointment. I knew it would be a lot but you…
After months of being on the waiting list at Cooks Child Study Center, we finally got our acceptance letter!! The application process was tedious, rounding up every bit of information,…
As you may remember, well those who are on my Facebook page, I posted back in September that we found out that Jackson has mild hearing loss. I (and doctors)…
After taking some much needed time off and some deep, reevaluation and reflecting, I decided that I was going to start sharing our journey again. One of the reasons I…