Neurologist Update Pt. 2

After we received the negative iron test, we proceeded to test for dystonia, fragile X, chromosome microarray and exome trio, MR, neuropsych exam, spinal tap, and other miscellaneous tests including…

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MRI Results

As we were walking into the door after spending all morning at Cooks Children's Hospital in Fort Worth, Jackson's developmental pediatrician's number popped up on my phone. She said "I…

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Referral Road

It's taken me over a week to process and digest the information we received at Jackson's initial Child Study Center appointment. I knew it would be a lot but you…

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Acceptance Letter

After months of being on the waiting list at Cooks Child Study Center, we finally got our acceptance letter!! The application process was tedious, rounding up every bit of information,…

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ENT Update

As you may remember, well those who are on my Facebook page, I posted back in September that we found out that Jackson has mild hearing loss. I (and doctors)…

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I’m Back!

After taking some much needed time off and some deep, reevaluation and reflecting, I decided that I was going to start sharing our journey again. One of the reasons I…

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