Helpful Books
These books have helped me in one way or the other. I'm a sucker for any kind of self-help, motivating, and educational book! Parenting Parenting with Love & Logic by…
Recipes
These are some of our tried and approved recipes! Jackson's diet consists of mainly plant-based and soy free with little dairy. I will update as we find new recipes! https://inspiralized.com/deconstructed-manicotti-skillet-with-zucchini-noodles/…
Our New Approach
In the midst of all the appointments, misdiagnoses, genetic testing, oh yeah...and Covid, I was desperate to get another opinion for Jackson. While having lunch with a friend, she was…
Neurologist Update Pt. 2
After we received the negative iron test, we proceeded to test for dystonia, fragile X, chromosome microarray and exome trio, MR, neuropsych exam, spinal tap, and other miscellaneous tests including…
Neurologist Update Pt. 1
It's been a little over six months since I've updated my blog. I've sat down many times to only walk away from my computer because I can't find the words…
MRI Results
As we were walking into the door after spending all morning at Cook Children's Hospital in Fort Worth, Jackson's developmental pediatrician's number popped up on my phone. She said "I…
Referral Road
It's taken me over a week to process and digest the information we received at Jackson's initial Child Study Center appointment. I knew it would be a lot but you…
Acceptance Letter
After months of being on the waiting list at Cooks Child Study Center, we finally got our acceptance letter!! The application process was tedious, rounding up every bit of information,…
ENT Update
As you may remember, well those who are on my Facebook page, I posted back in September that we found out that Jackson has mild hearing loss. I (and doctors)…
I’m Back!
After taking some much needed time off and some deep, reevaluation and reflecting, I decided that I was going to start sharing our journey again. One of the reasons I…